A new online space for sick and disabled scholars (and students)

Based on a lot of conversations with other disabled and chronically ill scholars and students, I realized that there really needs to be a space of our own where we can vent about access issues, microaggressions (and overt ableism), crowdsource accommodations, and anything else that people need/want to discuss.

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NWSA 2014 selfie while sitting next to my wheelchair

It is currently a closed group, but people are welcome to join.  As of right now, it’s called Sick and Disabled Scholars (I’m hoping someone comes up with a snazzy name, but the only idea I have is taken up by the blog PhDisabled). It’s open to professors, students, independent scholars, and any other way a person might self-define to fit under that umbrella.  Same goes for definitions of sick or disabled….chronically ill, handicapped, spoonie, gimpy (I’m not the self-definition police…I tend towards the shocking and un-PC).  It will also be advertised on the blog Conditionally Accepted (if you haven’t checked it out, it’s pretty awesome).

Back to the school grind…

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Pre-performance selfie

Pre-performance selfie

Since I’ve been too busy to properly blog lately, I wanted to share this pre-dance performance selfie (I never thought I would be able to rock a bright pink lip, but I got a LOT of compliments!). Eye liner is black liquid liner from Revlon, cheapie false lashes, Rimmel Stay Matte foundation in the lightest color they have, cheapo blush, and NYC Expert Last lip color in Forever Fushia (foundation & lipstick were complimentary promotion items through Influenster

Chronic Illness and the Question of “Access”: A Primer/Manifesto in One Post (RIDES AGAIN)

As someone with chronic illnesses & disabilities, this was a really helpful post on how to deal with gatekeepers. I only wish I had the spoons to do this as effectively as she does it!

It's complicated.

NOTE: This post was originally published on January 14th, 2014 at 23:09 CST. It was subsequently removed from my blog in order to make some minor edits and clean up the text. This version has been slightly revised.

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This post is a sketch of ideas that have been coming together in my head lately. I suspect I’ll probably revise it (even more), expand upon it, and link it to other, forthcoming posts.

You see, I composed this in the wake of conducting more than 12 hours of phone calls—over the course of 4 business days—necessary to get just 1 medication filled. In the coming weeks this scenario will repeat itself (since I take more than half a dozen different medications) but for now the biggest battle has been won. [1]

The reason why payors do not like to pay for the medication I just wrangled and sweated to get…

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No Man’s Land

If you have privilege, it’s your job to speak up against injustice….it doesn’t matter what your privilege is (race, class, sex, ability, identity, etc), and it’s not my job as an oppressed person to educate and fight.

Fierce, Freethinking Fatties

Privilege — it comes up a lot when you are in any Social Justice movement. Depending on how long you have been around, you can have a pretty good idea of what it means and how it works. But, if you have been around long enough, you get to hear ALL of the derailing arguments and you get to see a very well-made point spiral down into nothingness. I want to talk about one in particular.

Click the pic for an awesome talk about “The Privilege of Being Part of the Problem.”

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OOTD: snow leopard Kiyonna wrap dress

OOTD: snow leopard Kiyonna wrap dress

Excuse my at-home bathroom selfie, but this was my most recent Gwynnie Bee package. It’s a 3/4 sleeve wrap dress from Kiyonna….and I wish I could have kept it! The fabric was really comfortable and I got a lot of compliments on it.

Photo description: photo taken in front of a tall bathroom mirror with a white frame. I’m leaning against the backtub on my left side for balance, my left arm at my hip, my right arm holding up the phone for the camera. The dress is knee length with black capri leggings showing. The v-neck shows a little bit of cleavage. My hair is shoulder length and down with the color a medium auburn.

Team Gnomercy fundraiser

Team Gnomercy fundraiser

As I work to transition the Adventures of a Part Time Wheeler blog from Blogger to WordPress, I wanted to let you folks know about my fundraiser to get better adaptive equipment that my insurance won’t cover.  You can either get a fundraiser specific shirt with “That’s How I Roll: Team Gnomercy” on it or one of 3E Love’s other awesome designs.  Even if you can’t financially help, spreading the word would help this gimpy grad student get through life!